This year, on Rare Disease Day, I want to focus on Motor Neurone Disease (MND), also known as ALS in the USA. There are thousands of rare diseases which affect millions of people globally. I often write about trigeminal neuralgia, a rare facial pain condition that I live with. But…
Category: Rare Disease
Awareness
Read more
Rare Disease Facts Which You Might Not Know
Since Rare Disease Day falls on the 28th of February, I thought I’d share some facts about rare diseases. My Own Rare Disease Story After living with facial pain for many years, a doctor finally gave me a diagnosis of trigeminal neuralgia in 2009. I was unfamiliar with the name…
Awareness
Read more
What it’s Like to Live With a Rare Disease?
If you’re a regular reader of my blog, you’ll probably know that one of the conditions I live with is trigeminal neuralgia. As well as being an extremely painful condition, it’s also rare. When you live with a condition which is classed as a rare disease, life can become even…