There is More to Chronic Pain Than Just Pain

Most people understand pain. Whether it’s from an occasional headache, a broken leg or a stubbed toe, most people understand what pain feels like. But chronic pain? Not everyone will understand what that is like.

When does pain become chronic?

Chronic pain is defined by NHS Inform as pain that carries on for longer than twelve weeks despite treatment.

Chronic pain is pain which lasts longer than twelve weeks.

Pain that lasts for twelve weeks probably sounds dreadful to most people. Unimaginable to others. But what if the pain goes on for longer? For twelve months perhaps? Or even twelve years? Or what if the pain continues with no end in sight?

I have lived with chronic pain since I was a teenager. I am now 53. I have pain 24/7 from various conditions. I can’t imagine life without pain. I do enjoy life despite it, but I really can’t imagine not having pain. It’s just life.

It’s life for millions of people worldwide.

There are a huge number of conditions which cause chronic pain, but many people are misdiagnosed or completely undiagnosed.

A few conditions which could cause chronic pain :

  • Arthritis
  • Back pain
  • Fibromyalgia
  • Irritable bowel syndrome
  • EDS (Ehlers-Danlos Syndrome)
  • CRPS (Complex Regional Pain Syndrome)
  • ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome)
  • Trigeminal neuralgia and other headache or facial pain conditions

Very often, there is no known cause for someone’s chronic pain. When people can’t be given a name for their pain, it often leads to them feeling like they’re not believed. A name does make a difference.

Chronic pain affects so many aspects of life

There is more to chronic pain than just pain.

To wake up (if they’ve even slept) knowing that the day ahead is simply going to be full of the same pain, can be grim and dire. No matter what the cause is, it normally means a day of agonising pain and a day of popping pills. It’s unpredictable, demanding and demoralising. It can be soul destroying.

But there’s more to chronic pain than just the pain. It’s more than the pain itself and it’s more than taking medication four times a day.

Chronic pain can bring with it a multitude of other problems.

People can suffer from fatigue, tiredness, insomnia, confusion and concentration problems.

Because of their chronic pain, people often live with emotional and mental health problems such as depression, anxiety, stress and tension. They may live with fear, guilt, frustration, bitterness and anger. They often suffer from self-loathing, low self-esteem and low self-confidence.

Chronic pain sufferers are often not believed

A person with chronic pain often feels the needs to justify themselves to other people. Their pain might not be visible. People might not believe them. Family. Friends. Colleagues. Benefit agencies. Insurance companies. Even doctors. Sufferers are living a nightmare most days yet the people who should believe them, often don’t. They’re told the pain can’t be that bad, that there’s nothing wrong with them or that they’re just lazy. They’re told to just get out of bed and do some exercise. They are told they are fit to work despite their pain.

Financial problems

Many sufferers are unable to work. They depend on state benefits and often financial help from families. Food, heating and medications can be unaffordable. They often feel that they are a burden.

Friends and families

Chronic pain has a huge impact on people's lives. It can sneak in and snatch away so much - careers, plans, dreams, friends and families.

When someone has chronic pain, their pain dictates what they can and, more often, can’t do. They can’t always go for coffee with their best friend. They aren’t always able to go to a friend’s birthday party. They may not manage to go to a family wedding.

Friends sometimes drift away. They might want a more ‘reliable’ friend. They might want one who will be there, not one who cancels at the last minute because of their pain time after time.

Families can become frustrated. Sometimes they can’t understand why the pain can’t be cured with some extra strong headache pills. They might not be able to handle seeing their nearest and dearest in pain. Sometimes they might not believe that the pain can be so controlling. And sometimes they might want a more ‘reliable’ relative. Sometimes they too just drift away.

Many sufferers deal with loneliness and isolation because of this.

Relationships

Close, intimate relationships are often affected too. It takes an understanding person to cope with their partner’s chronic pain. They often need to be a carer as well as a partner. They often need to accept nothing more than a gentle hug, put up with the days when showering is impossible and give help with simple daily tasks like washing and dressing.

A sufferer’s pain becomes their partner’s pain too

They see the moods, the frustration and the tears. Their partner’s pain affects them so much, that it actually becomes their pain too. The couple needs to share it. They need to endure it together. But sadly, for some couples, that becomes too difficult.

Finding help

Prescriptions are dished out for the pain, but those symptoms above need to be addressed and treated too.

Getting help for all the accompanying symptoms is so important. It’s no good just treating the pain. The whole person needs to be treated.

Better solutions need to be found. Medical professionals need to recognise that there is more to chronic pain than just the pain. Hopefully we will start to see a difference soon because the World Health Organisation is changing how chronic pain is categorised.

Chronic pain is a condition in its own right

Chronic pain will now be classed as a disease in its own right by the world Health Organisation

This month (May, 2019), for the first time, Chronic Pain will be included as a disease in its own right by the World Health Organisation.

There will be two classifications – Chronic Primary Pain and Chronic Secondary Pain.

The International Association for the Study of Pain explains the classifications :

Chronic Primary Pain

This will be characterised by disability or emotional distress, which does not fall under the heading of another disorder. It will cover widespread pain, chronic musculoskeletal pain, some headache conditions, non-specific pain and other conditions such as chronic pelvic pain and IBS.

Those conditions will now be classed by WHO as chronic pain syndromes.

Chronic secondary pain

This will have six categories:

Chronic cancer-related pain is related to cancer or its treatment.

Chronic postsurgical or post-traumatic pain develops or increases in intensity after a tissue trauma.

Chronic neuropathic pain is caused by a lesion or disease of the somatosensory nervous system. Peripheral and central neuropathic pain are classified here.

Chronic secondary headache or orofacial pain contains chronic forms of headaches, orofacial pain, such as chronic dental pain.

Chronic secondary visceral pain is chronic pain secondary to an underlying condition originating from internal organs of the head or neck region or of the thoracic, abdominal or pelvic regions.

Chronic secondary musculoskeletal pain is chronic pain in bones, joint and tendons arising from an underlying disease classified elsewhere.

Chronic pain sufferers need hope

When chronic pain is recognised as a health problem in its own right, sufferers should hopefully receive access to better treatment. It could also mean extra funding towards much needed research.

Hope is a small word, but it means so much. Chronic pain suffers need hope.

People desperately need this hope. They need hope because there is more to chronic pain than just pain. Much more.

Thank you for taking the time to read this post. I’d really love to hear what you think, so please leave a comment below.
Please click the buttons below to share on social media.

37 thoughts on “There is More to Chronic Pain Than Just Pain

  1. Mark Kent

    most people never see the every day effects .i have m.e ..ibs..migraines long list health issues
    i take part in a lot lot research

    my blog,http;//mark-kent.webs.com

    twitter,supersnooper

    Liked by 1 person

  2. Wow, you have encompassed so much in this post. I nodded to all of it.. it affects so many aspects of life, it’s not black and white, it’s invisible so we’re often not believed, it is certainly far more than ‘just’ pain. An excellent post! xx

    Liked by 1 person

      1. Beth T. Houser

        My daughter said, “If there was a god, he wouldn’t let you suffer like this, Ma.”

        I said, “If I didn’t have the Lord holdin me every minute, Baby Bear, I couldn’t bear it at all. I wouldn’t have thought of you and our family – I would’ve just ended it years ago .”

        It may be different for others, but for me – my hope is that I am in His hand, and in the end, I will step into a glorified body and spend eternity with the Son who died for me.

        Today is temporary, so the pain is temporary. Life is in the moments! I grab every moment I can, and focus on what is infinite – love, joy, peace, long-suffering, gentleness, goodness, faith, meekness, temperance. Against such there is no law … against such PAIN DOESN’T STAND A CHANCE!

        Like

  3. sjd68

    I can’t imagine what it must be like to be in constant pain. You’re right though trying to explain Chronic Pain to others and having them believe. I work in Pharma and it was an issue when Fibromyalgia drugs launched years ago in the states. The doctors almost didn’t believe it was a condition. My wife used to be a chronic migraine sufferer and luckily that has subsided for her. I’m happy that you have hope and that one-day others won’t have to suffer from chronic pain as you have.

    Liked by 1 person

  4. Francisca Garreton

    Chronic pain can be so frustrating and debilitating! I was sick all week with joint pain and it was really frustrating not to be able to move as much as I needed and every movement was just so painful. Thanks for sharing your insight.

    Liked by 1 person

  5. Joyce Osiango

    It is really important to have family members and friends who care and can always offer to help when through such pain. Sometimes the feeling of not having anyone can increase the pain so much.

    Liked by 1 person

  6. Trish

    I didn’t know WHO had classified chronic pain as a condition in its own right – that’s a really good move. If nothing else, it shows the medical field are starting to take it more seriously, which will benefit so many people.

    Liked by 1 person

  7. erica3639

    I have a couple friends who suffer from fibromyalgia and EDS. The lack of understanding is horrible. One with fibro recently went to a specialist who told her to basically suck it up and deal, after refusing to continue refilling her prescriptions. Told her to try meditation. I am always sad and horrified at how much people like that struggle to even be believed or treated with basic dignity by their doctors. Or even friends and family in many cases. I can’t imagine what life like that feels like, but I know compassion can go a very long way.

    Liked by 1 person

    1. Oh, Erica, that is awful. Doctors are the people we rely on to help us. It is terrible when they don’t support us. Telling a patient to suck it up is terrible and surely goes against their medical ethics.

      Like

  8. You have a lot of good points in this post! They are now separating ‘chronic’ and ‘intractable’ as two separate types of pain. The ‘chronic’ is constant pain that comes to an end and might kick back in. “Intractable” is pain that is lifetime, never to be expected to end. Intractable pain is nothing to aspire to, lol. But the thing I have found in dealing with it is to accept the ‘new normal’. And to accept that someone who does not a relationship with chronic pain personally, will never truly understand what we go through. Even doctors will not have this capability to really get it, unless they get it. Had to put some sarcasm in, that is just my personality. oops. I have a post waiting to be edited, one day, that goes into it a little more. [pardon any typos, I can barely see and the screen gets fuzzy the more I zoom in]

    Liked by 1 person

  9. I don’t have chronic pain, but one year I had intense pain in my side and it escalated into a kidney infection that led me to the ICU. Ignoring it almost killed me and I know that mine was only brief, and nothing like what those with chronic pain feel, but it makes me respect those who have it

    Liked by 1 person

  10. What a powerful post. Depression and loneliness are serious issues that come with chronic pain. It is difficult for people to see that and have an understanding for the person suffering. We all have to try and reach out to anyone we know with these issues.

    Liked by 2 people

  11. I’m not going to complain anymore when I have a migraine. When I have it its seems like the worst kind of pain, but it gets taken care with medication and some rest. I cannot imagine how it must be for people who are in pain for a very long time. After reading your informative post, am going to be more sympathetic and mindful towards people who complain but pain which I can’t see.

    Liked by 1 person

  12. In The Pastel Bag - by Joanna K

    As I was reading the article, I could think of two words: shame (for a condition not easy to understand), and guilt (for its permanent nature) .. Your article sheds light on life in pain. It helps people with no related experience to understand what that feels like and how they could be of support.

    Like

  13. Lyosha Varezhkina

    Just reading this post is making my heart jump in agony of pity. I know what it feels like and I know what it feels like when it no longer apply. I can only pray for people with chronic pain. And thank you for choosing this complicated topic

    Like

  14. Lavern Moore

    I have never experienced this condition yet I imagine that for those that do, this will be very informative. You bring a heightened awareness.

    Like

  15. Such an informative article ! I didn’t even know it had to be twelve weeks before pain is termed as chronic for one of my conditions interstitial cystitis it is six. I am sure like myself so many people and even their partners can relate to this article, especially the part about it being shared pain and not believed ! X

    Like

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.